Myhre Syndrome
Myhre Syndrome 

Myhre Community

Site Owner: Nigel Green
Home town: Swindon, UK

With my wife Stacey we have one daugter, Imogen who was diagnosed 14th February 2014. Imogen was six in 2017.

We are detrmined to support the increase in awareness and develop greater ties with others afected around the world.

I am aiming to register Mhyre as a charity shortly, as Jeans for Jeans have already recognised us & awarded £500 to incept the charitys work, website and inital running costs.


Ultimately, an end goal is draw together all UK and worldwide Myhre children & adults togteher, for a conference with Dr Starr who is a leading reasearcher & published writer on the sydrome.


Watch this space for more information.


Fund Raising Events: