I am aiming to register Mhyre as a charity shortly, as Jeans for Jeans have already recognised us & awarded £500 to incept the charitys work, website and inital running costs.
Ultimately, an end goal is draw together all UK and worldwide Myhre children & adults togteher, for a conference with Dr Starr who is a leading reasearcher & published writer on the sydrome.
Watch this space for more information.
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