Goals
Our Goals
Our goals are simple, we want to relieve the sickness and preserve health among those suffering with Myhre syndrome, who primarily (but not exclusively) live in the UK through the provision of:
Educate
To educate the public through information sharing programmes to raise awareness on all aspects of Myhre Syndrome.
Coming Soon...
Support
To provide advice, counselling and support for those suffering from Myhre Syndrome and their families.
Coming Soon...
Our aim is to raise awareness, educate and inform others through life experiences.
DEVELOPMENT
To support the development of medical practices relating to the diagnosis and treatment of Myhre Syndrome.
FUNDRAISE
Patience advocacy, group events, helping Myhre families gain access to financial support, respite and advice.