MYHRE SYNDROME

We are a group of passionate parents, with first-hand experience of Myhre Syndrome. We have come together from various professional backgrounds, each of us being able to contribute a different advantageous skill, along with a tremendous passion for raising awareness of Myhre Syndrome. Head over to our About section to find out how Myhre Syndrome UK & Europe became a charity.


From ‘Our Myhre Family’ to another, we look forward to a positive future...

MYHRE SYNDROME UK

We are a group of passionate parents, with first-hand experience of Myhre Syndrome. We have come together from various professional backgrounds, each of us being able to contribute a different advantageous skill, along with a tremendous passion for raising awareness of Myhre Syndrome. Head over to our About section to find out how Myhre Syndrome UK & Europe became a charity.

From ‘Our Myhre Family’ to another, we look forward to a positive future…

MYHRE SYNDROME

We are a group of passionate parents, with first-hand experience of Myhre Syndrome. We have come together from various professional backgrounds, each of us being able to contribute a different advantageous skill, along with a tremendous passion for raising awareness of Myhre Syndrome. Head over to our About section to find out how Myhre Syndrome UK & Europe became a charity.

From ‘Our Myhre Family’ to another, we look forward to a positive future…

Our Mission

We aim to educate and answer questions from families, the public, educators, and health professionals, head over to the Info section, to learn more. In addition, we are eager to participate in research opportunities from professionals wishing to study Myhre Syndrome. We can organise consented family involvement in any research programmes available.


If you are here, because of a recent diagnosis of Myhre Syndrome, please reach out to us via the Contact section.


To those who have fundraised and made donations so far, becoming a registered charity would never have been possible, and we are extremely grateful of your support. Head over to our Fundraising section, to read some fundraising stories and how those donations have provided help, so far.

"On our own we're just different, together we are Myhre"

Getting ‘Our Myhre Family’ Together

Here, we see ourselves as one big extended family, the best support group you will ever need, who are always there for each other, through the good and the bad. We understand, we advise, and we educate each other. We organise Meetup’s as often as possible - here is a short video of our recent Myhre Meetup…

Need Help ? 

Our Partnership with the Youth Hostel Association (YHA)

We would like to thank the YHA, for their continued support in making the ‘Myhre Meetup’s’ possible.



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