Fundraising
Our aim is to obtain funding for those diagnosed by supplying equipment or specialist treatment where required.
We will endeavour to support the well-being of our Myhre member and their direct family, whether it be to assist their quality of life or provide short-term respite. By arranging regular meet-ups we will be able to maintain an effective productive working charity as well as meeting fellow Myhre
families.
Our ultimate goal is to fund enough research in order to diagnose earlier and eventually prevent more Myhre cases.
How Do Your Donations Help?
Enriching and developing a Myhre member
Well-being/Support
Meetings/Family Get Togethers
Provide equipment/specialist treatments
How Fundraising Has Helped So Far
How You Can Support Us ?
Whether you are an individual or a charitable trust, a donation from yourself can vastly improve the quality of life for the patients and families suffering with Myhre Syndrome. Please see below our links to our fundraising pages as well as our upcoming fundraising events.
Past Events
Here is just a small selection of some of our past events that have been raised funds for our charity. If you are interested in getting involved in our fundraising events then please contact us by clicking the button below.
