Team Member
Stacey Green
Secretary & Trustee
Stacey Green, co founder of Myhre syndrome uk & Europe has over 21 years of experience of working with young children. She is a professional in Early Years, holding a BA honours degree. Stacey works with a range of children with various abilities, supporting families and liaising with professional agencies.
Stacey is passionate about raising awareness for Myhre Syndrome having first hand experience of the disease from her daughter Imogen whom was diagnosed in 2014.
In 2014, Stacey established the first ever Myhre Syndrome Facebook group for parents and patients with Myhre. When the group first started it was Stacey and one other family from Texas, there are now over 230 members world wide.
Stacey lives in Wiltshire with her devoted husband Nigel, who also is a trustee for the charity and their beloved only child, Imogen.
Stacey is actively involved with the day to day running of the charity as well helping to organise events and fundraisers.
In her spare time , Stacey enjoys travelling, social events and exploring the great outdoors.
